Welcome to the Disability Depot! I’m Capricious Lestrange and I’m thrilled you stopped by to see what Disability Depot might have to offer you. The goals of the blog have changed over time and I figured it was high time I changed this about section to more accurately reflect those goals and what I’m all about these days. I initially started this blog with the main purpose of sharing tips and tricks on how to get along living with a chronic illness that forces one to live a mostly home-bound life, but I’ve found my focus to truly lay with becoming well enough to not have to live that life anymore. To that end, what I share here are the things I’ve found that are making that possible; my focus is on finding wellness.
It’s been a long road, with many trials and errors. Some of the things I have written no longer hold true for me, as the last year has been full of exciting, positive changes and new discoveries, including the fact that if I even have Myalgic Encephalomyelitis or Chronic Fatigue Syndrome (ME/CFS), as they call it here in the U.S., then it’s most likely as a consequence of having Ehlers-Danlos Syndrome, which you can read more about in my blog. I don’t have an official diagnosis for it as of now (May, 2017), but hope to by year’s end. I have also been diagnosed with Degenerative Disc Disease, Irritable Bowel Syndrome, Fibromyalgia and POTS. I suspect I have either Chiari Malformation or Craniocervical Instability and a Mast Cell condition, as well, but I’m doing my best to wait patiently to be evaluated for these conditions by doctors who actually know how to do so.
Just last summer, I was still bedridden a good portion of the time due to the severity of my POTS and my migraines, but thanks to many of the changes I’ve made to my diet, supplement protocols and new therapies I’m trying, I’m able to enjoy most of my time upright and out of bed, even spending several hours a week out shopping, walking, and making a few new friends!
A few fun facts about me are that in my former life I was a teacher, poet and writer. I am unable to perform these tasks now due to the fatigue, migraines, anxiety and cognitive impairments my illnesses cause, but I hope to someday return to writing and poetry and I greatly enjoy the writing I do here, but I have to be very careful about how much I do, so my publication can be a bit sporadic. Bear with me, please.
I was also a very inquisitive, active person and I suppose that still comes out in its own way. I consider myself a lifelong learner and took a lot of classes. When possible, I still enjoy going to see plays, movies, opera, museums of all kinds and a few sporting events. I used to love to travel and still dabble in photography though I don’t have anything more than my cellphone with which to take pictures anymore. On occasion, I do a pitiful job of dabbling in visual art, but it’s more for relaxation and self-expression for me than anything else. It’s a particular challenge with having poor motor control, but I suppose that’s part of what gives me the freedom to be okay with making mistakes despite my type-A personality.
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My wish for this blog is that it will bring others the health and happiness that the things within have brought me. Some things may seem overly simplistic, others too complex, but all have proven to work quite well for me and others and so I share them with you. May your travels be lightened by them!
P.s. I call myself Capricious because when I was studying vocabulary for the graduate exam with my ex, she read the definition for Capricious; inclined to change one’s mind, and added “that’s you!” I was offended at the time. I didn’t make the connection until many years later that the reason this was true was because I always had big dreams and since I’m emotive I always spoke them out loud, but often had to scale back or give up on those big dreams because the realities of my own limitations would soon set in. I’m also not exactly the conventional sort, so I came up with the pseudonym “Capricious Lestrange” because I feel the chronically ill are probably all looked at this way to some degree. We’re all forced to make constant concessions because of our illness and often seem strange to “healthy” people for our “choices,” so I decided to wear my difference proudly.